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Objective To examine agreement between patient and proxy responses on the Quality of Life in Neurological Disorders (Neuro-QoL) instruments after stroke. Design Cross-sectional observational substudy of the longitudinal, multisite, multicondit[...]Article
Pamela A. Kisala ; David Victorson ; Ratna Nandakumar ; Andrew Shermeyer ; Denise C. Fyffe ; Allen W. Heinemann ; Trevor A. Dyson-Hudson ; David S. Tulsky |Objectives To develop clinically relevant interpretive standards for the Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) Basic Mobility and Self-Care item bank scores. Design Modified “bookmarking” standard-setting methodology, in[...]Article
David S. Tulsky ; Pamela A. Kisala ; Callie E. Tyner ; Jerry Slotkin ; Christina Kaufman ; Christopher L. Dearth ; Annamarie D. Horan ; Simon G. Talbot ; Jaimie T. Shores ; Kodi Azari ; Curtis Cetrulo ; Gerald Brandacher ; Carisa M. Cooney ; David Victorson ; Mary Dooley ; L. Scott Levin ; CDR Scott M. Tintle |Objective To identify the most important health-related quality of life (HRQOL) domains and patient-reported outcomes after upper extremity transplantation (UET) in individuals with upper extremity amputation. Design Verbatim audio-recordings of[...]
